Canadian Angelman Syndrome Society and Angelman Syndrome Foundation Announce collaboration to Increase Support for Families

Today the Canadian Angelman Syndrome Society (CASS) and the Angelman Syndrome Foundation (ASF) announced that the two charities will collaborate with a shared goal of increasing research and support to Angelman syndrome (AS) families. United, the organizations will have the ability to make a greater impact in the AS community by supporting initiatives like the ASF Family Fund, AS Clinic Network Expansion, AS Research, Family Resources and Fundraising. The collaboration of the organizations will also help amplify the impact of every donor dollar.  

“This is a very significant announcement for CASS and a very exciting time for the Canadian AS community,” said Brad Schiele, President of CASS. “The ability to leverage on the vision, leadership and networks established by the ASF will allow CASS to better support Canadian families throughout their AS journey”.

Both organizations have independently operated with similar missions, visions, and values for over 25 years; providing support to families that have received an AS diagnosis. This collaboration announcement is a result of extensive, collaborative and thoughtful planning from both organizations’ leaderships teams, feedback collected from the AS community, and their respected scientific, communications and health care experts and advisors. The collaboration initiatives will occur in a phased approach and will be rolled out over the next 12 to 18 months.

“At the Angelman Syndrome Foundation we believe that when we collaborate and work together as a community, we can make a bigger impact to support families on their AS journey.  The ASF is thrilled to collaborate with CASS to continue the mission of supporting all AS families from diagnosis to cure and beyond”.  Amanda Moore, CEO of the Angelman Syndrome Foundation.